Editorial
Down Syndrome: Leave No One Behind
Like any other International Day marked annually, the global community will tomorrow commemorate this year’s Down Syndrome Day. With the theme: Leave No One Behind, March 21, 2019 will be the 14th anniversary of the event set aside by the United Nations (UN) to provoke awareness, special attention and to sensitise humanity on the plight of patients with the ailment.
Also known as Trisomy 21, the Down Syndrome has become one of the world’s most severe mental and neurological challenges, mostly characterised by slanting eyes, broad short skull, broad hands, with short fingers and trisomy of the human chromosome numbered 21 whose origin is traceable to J.L.H. Down, 1896, an English physician.
Basically, the United Nations and other stakeholders will observe the day with a view to re-echoing the voices and plight of millions of people living with the syndrome, whom from all indications, are being stigmatised, demonised and discriminated against by some traditional societies.
So far, modern medical science is yet to establish a known cure to the ailment, but people with the syndrome can be treated, managed, assisted and encouraged to live a fulfilled life. Gladly, the ailment can be detected from birth and follow-up attention given.
Contrary to speculations and beliefs that the ailment is usually caused by drug abuse, mostly by pregnant women, medical science has proved, beyond reasonable doubt that the syndrome is a genetic problem likely associated in the pregnancy of older women, than young ones.
Ironically, this syndrome exists in all societies, including those with hi-tech medical science. However, in most Nigerian communities, the ailment is usually associated with evil or demonic forces, some erroneously associated with ancestral curses.
Worse still, some families go the extra mile by isolating or hiding patients with the syndrome and, indeed, treat them like animals by exposing them to pre-mature and avoidable deaths.
That perhaps informs this year’s theme: Live No One Behind. And The Tide thinks it is apt and instructive. Studies have, in fact, shown that patients living with the syndrome are no evil and, if properly handled, can feel fulfilled and develop self confidence. They have productive life and can, if well nurtured, contribute to societal development. All it requires is to appreciate and understand their disability and turn it to ability because, as the sages say, there is ability in every disability.
Society must show them love and care as they cannot help themselves, if left alone. We should accept and support them wherever and whenever they come our way. Any country or society that does not care or cater for the physically or mentally challenged person is not worth the name.
People with the syndrome require special attention: education, healthcare, therapy, social amenities for recreation and diet. Society should not deprive them of their natural rights and must not be inhibited or segregated against by anyone, rather they should be integrated into the family and society. Their psychomotor activities should be promoted always to encourage them develop self confidence.
While The Tide appreciates the fact that, so far, there is no tangible medical solution to the ailment, we believe strongly that the society owes them a moral responsibility by ensuring that they are not ostracised in any form whatsoever.
Apart from few isolated centres or schools, mainly administered by religious or social bodies, the government in Nigeria may have not done enough in this regard. No amount of investment in this direction can be seen to be a waste.
We, therefore, implore the Muhammadu Buhari-led administration, through the National Assembly, to promulgate a law which should be domesticated at the second and third tiers of government to ensure that those with the syndrome can be properly incorporated into the larger society.
The Tide, indeed, commends the United Nations for providing the platform for people living with the ailment to have a voice and, by so doing, be appreciated by the privileged members of the society.
It is also important to take other pro-active steps to stem the rising cases of people living with the syndrome. People should be encouraged to have their children during active productive years and prevent self medication, mostly by pregnant mothers. Sustained education, enlightenment and sensitisation remain the way to go.
As we join the rest of the world to mark the day, tomorrow, let all well-meaning people seek ways and means of identifying patients with the ailment and show them love and care. They must not be subjected to sub-human standard.
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