NGO Begins Data Capturing Of Persons With Albinism In Edo

The Initiative for Advancement of the Albinism Cause (INAAC), a Non Governmental Organisation, said it had begun preliminary work to collate database of Persons With Albinism (PWAs) in Edo State.
Founder of INAAC, based in Edo, Miss Joy Odigie, said this in an interview with The Tide’s source in Benin on Monday.
Odigie said a database of PWA was necessary to plan for their welfare as well as to know how best resources could be allocated to them.
“As an NGO working to improve the welfare of PWA, having a database will help us know the number of persons that fall into these categories.
“We are starting our pilot phase in Edo and hope to replicate it in neighbouring states.
“Data is needed to ensure better planning; we want to develop responses that are targeted at specific needs of these persons,’’ she said.
Noting that not every person with Albinism was poor or lacked access to eyes and skin care, Odigie said: “We want to know those that are poor, those that live in rural and urban areas; what they do for a living and the peculiar challenges they face.
“We want to also know those that can afford and have access to sunscreen products,’’ she said.
The founder further said the organisation had started conversation with relevant stakeholders on the implementation of the project.
“We are reaching out to the State Government as well as the 18 Local governments in the state to get their collaboration,’’ she said.
The Tide’s source reports that the core objective of INAAC is to inspire PWAs to overcome barriers through the access to eyes, skin care, education and empowerment.