Features
The Melbourne Experience:Sights And Sounds Of AIDS
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justice. On the opening day of the conference, some members of the Global Network of People Living With HIV were dressed in peculiar attires signifying cultures of their various countries, which clearly stood them out to the admiration of those who know and respect what it means to fight for one’s right.
This is another lesson for not only people living positively across the globe, but for also government of countries, who should also know that, no matter their circumstance, PLWHIV also have rights that should be judiciously respected.
Former U.S. President, Bill Clinton’s appearance on the 3rd day of the conference turnout to be another cynosure of the conference, more because of what he said and how he handled HIV/AIDS activities who interrupted his speech.
Midway into his speech, show cased by his comment that it is “unbelievable” that after all this time, “stigma and discrimination are on the rise in some contexts”, the activists berged into the conference hall.
They carried placards with various inscriptions and chanted slogans, all boiling down to a demand for what they called “Robin Hood Tax.” It was aimed at funding HIV/AIDs treatment by governments and implementing partners.
They obviously picked the moist auspicious moment of Clinton’s appearance as the Executive Director of Clinton Health Access Initiative (CHAI), involved in supporting HIV programmes in identified countries to state their concerns.
Unlike what statement of such calibre would do in some African climes, Clinton paused in his speech, listened to their grievances, and after they were done, continued. When he was done with his speech, almost every participant wanted to shake his hand, or touch him. And from the manner in which he handled the situation, but for the impossibility of shaking everybody, he would have done so.
The other three key memorable highlights of AIDS 2014 are the reception organised by the Nigeria Community in Melbourne to host Nigerians who attended the conference, the Red Ribbon Award to 10 organisations working on HIV/AIDS across the world and the “Gilead Protest”.
The reception which was organised by the Nigerian society of Victoria Incorporated (NSV), with support from the Nigeria High Commissioner in Canberra, Australia had several dignitaries in attendance led by the Hounourable Minister of Health, Professor Onyebuchi Chukwu, who represented President Goodluck Jonathan at the conference.
Beyond providing an opportunity of seeing many Nigerians together in a foreign land, it was also an opportunity for yours truly, to have a taste of typical Nigerian equisi soup and garri.
Yours truly could also boast of having shook hands with President Jonathan through the Hon. Minister of Health.
For all its worth, members of NSV promised to assist the federal government of Nigeria in health concerns, particularly HIV/AIDS –related.
Ten exceptional community-based organisations won the 2014 Red Ribbon Award for their inspiring work in reducing the impact of the AIDS epidemic in their various countries. They were presented with the prestigious prize in a special session at the conference.
The 2014 winning orgnisations were from the Democratic Republic of Congo, Guyama, Indonesia, Iran, Kenya, Lebanon, Malawi, Nephal, Ukraine and Venezuela.
In the Gilead protest, treatment activists at the conference held a die- in to protest the exorbitant pricing of Sovaldi, Gilead’s new hepatitis C Virus (HCV) drug.
HIV positive patients with hepatitis gathered to protest the high price of Sovaldi which helps to cure hepatitis in people living with HIV/AIDS.
But the claims and counter claims by Gilead and users of the drug turned the protest into an interesting debacle.
For instance, Gilead claims that Solvadi has to be priced high to enable them recoup their investment. Whereas facts according to researchers has shown that Gilead has already sold at least $ 3 billion worth of Sovaldi, and sales will soon surpass their investment.
Again, Gilead claims that the price for Sovaldi is “cost effective” because it is cheaper than a liver transplant. But facts show almost 500,000 people die annually from hepatitis C, and that most people living with hepatitis C around the world will never even have the hope of liver transplant.
They therefore say that a cure should not be held hostage by high prices. Medicines should be priced so that people who need them can have access, not priced-based on a comparison with other invention.
Regarding the promise by Gilead that Sovaldi will be available everywhere, users say the company is currently making licensing agreements that limits access and keep prices too high for most of the world.
Meanwhile, Gilead also states that governments across the world can pay for Sovaldi for hepatitis C infected people. But the true picture is that even in high income countries, Gilead’s price is completely unaffordable. Reports show that paying for Sovaldi will bankrupt healthcare and education budget of such countries.
Researchers also say that a few months of treatment with new oral drugs (including Sovaldi) can cure Hepatitis C virus, but Gilead charges $84,000 to $168,000 for Sovaldi in the hinted states. Prices across Europe are similar.
Meanwhile, Sovaldi is unavailable and unaffordable in low-income countries, while access in high-income countries is limited.
The conference was spiced-up daily by various cultural displays by different groups portraying different cultures in Australia, while different colours and shapes were used to make dresses.